Social media has dramatically changed the way in which individuals go about their day to day lives. The simple task of keeping informed about global events has moved from print media to social media. Most humans all over the globe receive their daily intake of news and current events from their phones via social media. News corporations now all have some form of a social media account that their subscribers can interact with. This has caused multiple issues when it comes to credibility as fake news began to circulate the airways of social media. This is because anyone can post about anything at any time on social media, in particular on Facebook. The spread of medical misinformation on Facebook reached an all-time high during the beginning of the Covid-19 Pandemic thus leading to global panic. There is no doubt that the credibility of news and information from social media is heavily declining and with billions of people all over the globe now relying on social media as their primary source of news, there has never been a better time to stop the spread of medical misinformation.

 

The rise of social media has changed the way that individuals read the news. 90% of internet and social media users seek online health information as the first port of call when experiencing a health concern (Choudrie et al., 2021). This figure alone shows the dramatically high number of users using social media as their primary source of, in their eyes, reliable news. Unfortunately, there is a very limited amount of reliable and reputable news that comes from social media due to the high volume of pollution in the form of fake news articles, especially involving cases of medical misinformation. The rise of social media has caused widespread chaos when it comes to finding reputable news sources online. Older adults were reported to find social media overwhelming and challenging to use (Choudrie et al., 2021). This is due to the high volume of fake news and opinion online when in the search for daily news. This alone shows the outcome of news moving to social media. It is expected that in at least 10 years’ time, most news will be found online on social media making it increasingly harder for older adults as stated above to receive and read real reputable news, especially with the rise of Covid-19. The spread of medical misinformation with the rise of Covid-19 over the past few years has brought an added sense of stress when it comes to separating fact from fiction on social media. Unfortunately, opinion can oftentimes get in the way of facts and the truth when it comes to online news, which in recent times has led to individuals becoming hesitant to get vaccinated against Covid-19 due to what they read online. Research showed that many individuals are unwilling to get vaccinated due to their own adopted opinions regarding Covid-19 based on what they have read or seen on social media (Lockyer et at., 2021). These findings suggest that the spread of medical misinformation can have drastic effects on one’s opinion towards something such as a vaccine.

 

 

People took to social media to voice their concerns regarding the pandemic which led to social media being littered with fake news and medical misinformation relating to the pandemic. Everything from home remedies in the fight against the virus to conspiracy theories relating to the origin of the virus itself. Covid-19 vaccination hesitancy is due to the context of the relationship between the spread of medical misinformation relating to Covid-19 and the emotional reactions that come with reading these false articles and posts (Lockyer et at., 2021). These emotional responses from social media posts relating to Covid-19 persuaded individuals to change their stance on the vaccine. People were desperate for answers because there wasn’t any information on the virus. In Iran, during the start of the pandemic in late 2019, a rumour circulated on social media that instructed users to drink alcohol to kill the virus. This led to 300 deaths due to the consumption of counterfeit alcohol containing toxic methanol. Over 1000 people were hospitalised (Love et al., 2020). During a time when billions of people were in fear of this unknown virus, it was evident that humans were at their most vulnerable when exposed to an unknown experience such as the pandemic. Billions of people all over the globe turned to social media with the aim to protect themselves and their own families from the virus. Circulation of rumours on social media regarding the use of the chemicals chloroquine and hydroxychloroquine led to multiple deaths also and hospitalisations all over the globe (Love et al., 2020). As a result of this users took to social media for the first time to fight against the spread of medical misinformation. Instead of sharing these articles and rumours of virus remedies, users began to report and spread awareness that not everything you read in the media is true. Questions began to rise with politicians alike questioning how this sort of medical misinformation occurs in the first place. Social media had taken the world by storm and soon the war against the spread of medical misinformation was named ‘The Parallel Pandemic’ due to the relevancy of social media during the Covid-19 pandemic.

 

The spread of medical misinformation comes down to one aspect of social media in particular which is a lack of censorship. Anyone with a smartphone can post anything at any time about any topic of their choosing. Facebook has tried to solve this issue by introducing the International Fact-Checking Network (IFCN), a branch of the Florida-based journalism think tank, Poynter. Facebook users in the US and Germany can now flag articles they think are deliberately false, these will then go to fact-checkers from the IFCN. From this point, if the post is found by the IFCN to be deemed fake, the post will be given a ‘fake’ tag which will negatively impact the story’s score on the Facebook algorithm, making it harder for people to see the post from then on. The problem is that fake news still can be posted on Facebook until the point where someone in the IFCN has seen it and reports it which can be up to a matter of days. Fake news still holds all its power for those few days until something is done about it meaning that it still allows millions upon millions of people to view the story at any given time before it is flagged by the IFCN. Most social media platforms only censor posts including hate speech, glorification of violence and harmful or dangerous activities (Niemiec, 2020). The inconsistencies within the binding rules and regulations of these social media platforms are another reason that there is a dramatic lack of censorship when it comes to what is allowed to be posted online. Posting online and on social media about world events and politics is becoming increasingly popular and will continue to grow as the world progresses with technology. The most worrying aspect regarding this is the potential increase in the spread of medical misinformation.

 

As more people move to social media to gather news and information about whatever it is that they please, more people will be exposed to fake news articles. As it has been discussed earlier on, the danger that medical misinformation has on social media users can be devastating, to say the least. To fix this, social media platforms such as Facebook must tighten their rules and regulations surrounding the use of the platform. For too long now, users have been exposed to fake news, and fictional articles while articles that contain violence, hate speech and dangerous activity are taken down immediately. The dangers of medical misinformation need to be considered on social media platforms. These fictional articles have killed people and will continue to do so if platforms such as Facebook don’t improve their rules and user regulations. As well as this, to make things even more difficult for the community to seek reputable journalism, countries including China and Russia have censored most real news that comes into their countries, social media included. The problem is that real journalism is being treated the same as fake news and medical misinformation. Social media platforms such as Facebook must take action to change this. While they might not be able to change country policy, they most certainly can change the way that they run their sites. If this is not acted on soon, social media platforms will continue to run as a business and do what is only right for the business itself rather than considering what sort of impact medical misinformation can have on the greater community.

 

There is no doubt that the rise of social media has impacted news corporations and the greater community alike worldwide. The effect that social media and the spread of medical misinformation have had on the community is quite dramatic. Lives are now at risk due to the lack of censorship and morality on social media platforms. Facebook has attempted to eradicate the spread of medical misinformation with the introduction of the International Fact-Checking Network (IFCN) which is a big step forward in the fight against fake news. Ultimately, the community won’t see a change until all social media platforms do their bit to protect their users from being exposed to potentially dangerous false information regarding serious world events. While social media is mostly used for the better of the community, the growing trend over the last 10 years is the rise of medical misinformation and its ability to seep its way into the community’s everyday lives. It’s not just up to the community to alter the issue, it’s up to the platforms to take charge and take responsibility in the fight against medical misinformation.

 

 

 

 

 

 

 

 

 

Conference Paper

14 thoughts on “The role of social media in the spread of medical misinformation relating to Covid-19

  1. Amber Dwyer says:

    Hey Luke, what an interesting read! Whilst I’m not surprised that older generations deem social media as difficult and overwhelming, I do find it interesting as I think many older adults do take what they see on social media as fact. I think because they’ve been conditioned to believe that all printed news (online and offline) must be fact as growing up, they would have only been exposed to fact-checked information in the newspaper and on the TV. This level of naivety is concerning as we know that so much of what is published online makes no promises to be accurate or credible information. I think for this reason, it’s generally older generations that fall victim to online misinformation the most. I also wonder if content creators projecting information and then labelling it as “just their opinion” counts as misinformation? I think it has become a trend and potentially a loophole for influencers and users to spread misinformation but preface it with an opinion tag, so that they can’t be called out for claiming facts that are actually false. But as we know, this disclaimer doesn’t make the users’ opinions any less influential; sometimes it can even give them more power which can lead to dangerous ramifications. I thought the point about social media platforms running as businesses was also interesting as it was a perspective I had not yet considered. Thinking so much about the users spreading the information for their own personal agendas, I didn’t even contemplate that the big companies platforming such voices were also largely benefitting from such injustices. I also wrote about the spread of misinformation in the digital space but focussed particularly on the wellness industry. Would love to hear your thoughts and see if we can draw any points of similarities or differences 🙂 https://networkconference.netstudies.org/2022/csm/688/social-media-weaponised-in-the-wellness-community/

    • Genevieve Dobson says:

      Hi Luke and hi again Amber (we are obviously drawn to the same topics!)

      Great read Luke and I agree – the fact that these social media platforms are at their core businesses that need to make profits, is a really important factor. In addition to a social conscious, I will require government and policy to really make them accountable for what it posted on their platforms. And obviously, as you mentioned, a massive task to monitor.

      What do you think about Elon Musk’s recent Twitter purchase? He is a known advocate for “free speech” no matter what the consequences or content it seems. I’m a little worried. We really need the policy and laws to keep up with the rapid advancement in technology and social media platforms.

      My paper also discussed health misinformation and how Health Promotion practice can help to dispute it and build alternative healthy online communities. Have a read if you like – I would love your feedback. Amber and I have also already had some discussion! Here’s the link: https://networkconference.netstudies.org/2022/csm/325/social-media-and-online-communities-provide-opportunities-for-health-promotion-practice-to-increase-its-effectiveness-and-dispel-health-misinformation/

      .

      • Luke Lawson says:

        Hi Genevieve,

        Thanks so much for the feedback!

        The Elon Musk situation is an interesting one. In my opinion, there is a fine between freedom of speech on social media and the overall pollution of fake news. His take on free speech on social media seems to be a bit broad. It will be interesting to see how Twitter transforms itself under Elon Musk.

        • Genevieve Dobson says:

          Definitely a case of watch this space Luke!

          I don’t think there is just one answer or one person/platform/organisation/government responsible for policing the fake news found online. It’s complex and needs a complex, thought out solution. When free speech causes harm to others it becomes more than just an argument for free speech. We saw the same during covid where people protested their individual human rights, without the awareness or consideration that individual human rights come second to the right to health and wellbeing of communities as a whole. There’s a hierarchy.

          I don’t delve too deeply into social media personally, so I may be naive in saying, but I think there is more good than harm in relation to building online communities and support networks. I hope with more awareness, knowledge and education we can all become better at identifying misinformation when we see it!

    • Genevieve Dobson says:

      And touching on your comments Luke and Amber about the older generation. Hopefully as the population continues to age, we will also get a little more tech savvy, and achieve a broader understanding of “fake news” v’s factual information.

      Although with the speed in which technology is developing, there will also be population sub-groups that will be left behind…. As an older student, I am well aware! 😉

    • Luke Lawson says:

      Hi Amber,

      Thanks so much for your feedback!

      Such an interesting topic to research. The idea of social media platforms being a business is something that I think all users should think about. It is disappointing that the spread of fake news and medical misinformation can have a benefactor in the form of social media platforms. Certainly something for us as users to keep in mind for the future.

  2. Hey Luke,

    Interesting essay. What do you think of the medical professionals and those who are actually qualified when they comment on the use of chloroquine and hydroxychloroquine? I realise that there are differing medical opinions and that those in the “medical left” are often “victims of cancel culture”.

    • Luke Lawson says:

      Hi Ruby,

      I think the beauty about social media is that as a user you are able to take in the information that you believe in. When it comes to something such as medical information, it comes down to the consumer of the information. It is up to the user to decide what they do with that information.

      Thanks for the question!

  3. Peter Goodwin says:

    Hey Luke, great paper!

    I have also written a paper on a similar topic called Social Media Infodemic and the Real Impact on our Community. I agree with your paper that the spread of medical misinformation comes down to the lack of censorship, although platforms like Facebook have fact-checkers it’s often too little too late, and the damage is done. I outlined in my paper that the amount of fact-checking is insufficient for the number of misinformation spreading online, and there is more social media platforms can do to protect their users from being exposed to this potentially dangerous spread of misinformation around medical advice. Please feel free to read my paper, I feel we have a lot of similarities in our research on this topic. https://networkconference.netstudies.org/2022/csm/1164/social-media-infodemic-and-the-real-impact-on-our-community/

    • Luke Lawson says:

      Hi Peter,

      Thanks for the feedback!

      I find it interesting considering how dangerous fake news can be that a platform such as Facebook can take so long to take it down. Definitely a thought-provoking idea.

  4. Jack Simpson says:

    Hi there Luke,

    Fantastic paper and of course very topical surrounding COVID-19. Throughout the entire pandemic and even before it, misinformation has been a problem when it comes to medical information. Social media platforms need to regulate this information or otherwise preface everything with “please see your local GP for your personal situation” as a means to combat this type of behaviour. I believe that if we can create an economic incentive for a company like Facebook to do it, there would be better moderation and regulation around this subject. Unfortunately we are now in an environment where social media is the new town square of sorts and as a result has shifted too quickly for legal regulation. In regards to misinformation, I wrote a paper around how social media facilitates a lack of offline action within political movements and misinformation is one of the key contributors toward that. If you have the time, I would love you to read it. https://networkconference.netstudies.org/2022/onsc/381/social-change-in-online-networks-how-social-media-facilitates-a-lack-of-action-within-real-world-political-movements/

  5. Kyla Geneff says:

    Hi Luke,

    Your paper was really interesting to read and you touched on a rather serious issue that has for obvious reasons become very prevalent within society today.
    I found your example surrounding the misinformation about chloroquine and hydroxychloroquine really good and it definitely bolstered your argument.

    I do wonder though what you are specifically referring to as medical misinformation (not in relation to the above example but just in general) and furthermore, fake news as at certain times labelling something as fake news can involve just as much opinion and potential lack of knowledge as it does to write it. Are you referring to news that doesn’t come from mainstream media as fake news? During the pandemic, there was at times news coming from health professionals and those within the medical industry being labelled as fake news, where do we draw the line? Is our labelling of certain news pieces as fake news almost becoming a cop-out/self-protective mechanism in regard to information that makes us uncomfortable or that we don’t want to believe as being true so we label it as fake instead of facing up to a potential hard truth?

    A really strong and thought-provoking piece, great job Luke!
    – Kyla

  6. Wilmer Wong Wan Po says:

    Hi Luke,

    You went through some interesting points in your paper. Indeed, misinformation has become rampant more than ever during the pandemic; I could not agree more with you. I think companies such as Facebook are well aware of fake news circulating on social platforms. As you said, Facebook has introduced the International Fact-Checking Network (IFCN), to combat the threat of misinformation, which allows users to flag misleading content. I believe campaigns of awareness, in addition to moderating the content on social media could help curb misinformation.

    Thanks,
    Wilmer

  7. Radib Ahmed says:

    Hi Luke Lawson,
    Your report was interesting to read since it details how individuals utilised social media during the Covid 19. Covid 19 is the most recent virus to gain traction on social media.
    I agree that social media has contributed to Covid 19’s medical disinformation. I completely agree that most of the disinformation originated from misinformation from others and that the majority of the information came from people who were not medical experts. In this case, however, no one knew anything about the virus until much later. Now I notice much disinformation on social media concerning the Covid 19 vaccination, and what strikes me is that I have no idea where this information is coming from. People do study material online to assist them in understanding the virus better, but perhaps they believe that since they have researched, they are experts?
    When Australia was informed about the virus, I conducted some research, but some of the material did not make sense, so I turned to medical specialists.
    Do you believe there is a method for social media to prevent individuals from sharing postings containing incorrect information?
    -Radib

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